Agenda for Morquio IV A Family Meeting

Saturday May 27th, 2006

NYU, New York, New York

12:30  Registration 

12:40 Lunch 

1:00   Welcome, McClellan Family Welcome, NYU 

1:15   Dr. Shinju Tomatsu, University of St. Louis

2:45  Dessert and Coffee

3:00   Mary Smith, The Carol Ann Foundation, topic:  to introduce herself & registry 

3:20   Dr. Pastores, NYU, Enzyme Replacement Therapy Trials for MPS I,II,VI
 
3:00   Dr. Grant , NYU Hospital for Joint Disease, The Comprehensive Center for Skeletal Dysplasias and Growth Disorders, patient care

3:20   Inotec Representative (?)

3:35   stretch and change seats
 
3:45   Fundraising, Gemma Yamamoto

3:55   Next Day Activities  Thank Yous. Presentation to Dr. Tomatsu.

4:15  NYU Film:  eight families on trials