Donate through Paypal

Morqiuo News 22 Now Here

Hello there!

You've reached The Carol Ann Foundation & The International Morquio Organization. My name is Mary Smith and my daughter, Carol Ann, has Morquio Type A. Here we bring you updated information on Morquio Type A and a list of doctors. Included are links to other families who wish to share the much needed emotional support for coping with Morquio. We include medical information that Dr. Shunji Tomatsu has analyzed from the questionnaire (registry), which is available to all Morquio patients and their families upon request.

When I first began The Support Group We were a modest group of 17 people. We have now grown to over 400 strong! With The Carol Ann Foundation we raise money to educate families, health care professionals and to fund research. We have created an International Morquio Organization Committee (IMOC) and an Institutional Review Board of doctors (IRB) to oversee proper use of medical terminology and for families to be able to seek out medical advice for their particular situation. As we all know, each patient is unique and importantance of seek out a second opinion is so very vital in order to make the best possible decisionfor your child's healthcare needs. Our mission statement is as follows:

MISSION STATEMENT

The Carol Ann Foundation is a 501c3 non-profit organization dedicated to seeking out people who have Morquio Type A in order to provide a mutual aid network; act as a advocate between patients, physicians and scientists; compile medical information into a database; and pursue funding for education, families and research.

It is our intent that you find not only answers here but hope as well. Thank you and God Bless!

In Loving Service,

Mary Smith, President