LINKS

European Day for Rare Diseases

Learn About Halo Website

Morquio Support Carrie Rea

about Luís Morquio Uruguayan paediatrician

what is morquio Medical Encyclopedia

Morquio support group online

The National MPS Society

Shriners Children's Hospital
Phone 1-800-237-5055

Transkaryotic Therapies

JCR Pharmaceuticals Company, Ltd.

Biomarin Pharmaceuticals

Novazyme Pharmaceuticals

Dutch Morquio web site

The National MPS Society

For Those Caring for a Child with MPS/ML Disorders This is Your Internet Gathering Place!

Austrian MPS Society

The Brazilian MPS Society

BELGIUM

Little People of America Organization

Make-A-Wish Foundation

Angel Flights

The Canadian MPS Society

CZECH REPUBLIC
Society for MPS

FRANCE
Vaincre les Maladies Lysosomales (VML)

GERMANY
Gesellschaft für Mukopolysaccharidosen

HUNGARY
Mukopoliszacharidózis Társág

IRELAND
Irish Mucopolysaccharide Society
Tel: +353 (0) 1-285-6234

ISRAEL
Department of Human Genetics,
Hadassah Medical Center
Tel: +972-2-6776931
Fax: +972-2-67774999

ITALY
Associazione Italiana per le Mucopolisaccaridosi e Malattie Affini (ONLUS)

THE NETHERLANDS
Vereniging voor kinderen met stofwisselingsziekten

NEW ZEALAND
Lysosomal Diseases in New Zealand (LDNZ)

NORWAY
Frambu senter for sjeldne funksjonshemninger
Tel: +47 64 85 60 00
Email: info@frambu.no

POLAND
Stowarzyszenie Przyjaciól i Rodzin Dzieci Chorych na Mukopolisacharydoze
Tel/Fax: +48 22 7153319

ROMANIA
Fundatia Romana Pentru Boli Lisosomale
Email: teo-titi@usa.net

SLOVAK REPUBLIC
Department of Pediatrics DFNP
Tel: +421/2/59371641, +421/2/59371264
Fax: +421/2/54774569
Email: spolmps@pobox.sk

SPAIN
Asociacion Para Problemas De Crecimiento - A.D.A.C. Andalucia Mucopolisacridosis
Email: I.Carrasco.000@recol.es

SWEDEN
Nationellt informationscentrumför små och mindre kända handikappgrupper
Tel: +46 31 343 58 94
Fax: +46 31 343 58 93
Email: smagruppscentrum.su@vgregion.se

SWITZERLAND
Verein Geselischaft Fur Mukoploysaccaridosen
Toessriederenstr 74
8193 Eglisau

UNITED KINGDOM
The Society for Mucopolysaccharide Diseases

Committee on Federal Legislation
Legislative UPdate #26 January 2004
Sissi Langford – Chair noniml@att.net

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