Dr. Shunji Tomatsu M.D. Ph.D.
Chief Medical Advisor
Associate Professor
Doisy Research Center Room 307
Department of Pediatrics, Saint Louis University
1100 South Grand Blvd., St. Louis, MO 63104.
Phone number: 314-977-9292
Fax: 314-977-9105
E-mail: tomatsus@slu.edu
Adriana M Montano, Ph.D.
Assistant Professor
Doisy Research Center Room 311
Department of Pediatrics, Saint Louis University
1100 South Grand Blvd., St. Louis, MO 63104.
Phone number: 314-977-9103
Fax: 314-977-9105
E-mail:montana@slu.edu
Dr. Michael Beck
Head of Center for Lysosomal Storage Disorders
Children’s Hospital University of Mainz
Department of Pediatrics
Langenbeckstrasse 1 Mainz, D55131
Germany
e-mail: beck@kinder.klinik.uni-mainz.de
Prof. Luis A. Barrera
Pontificia Universidad Javeriana
Carrera 7 No. 43-82
Edificio Jesus Emilio Rameritz (53)
Bogota D.C., Colombia
e-mail: abarrera@javeriana.edu.co
Professor Tadao Orii
Emirtus Professor of Gifu University, School of Medicine Head, Japanese Society for Research of Mucoplysacchridoses
40 Tsukasamachi -
Gifu-shi
Gifu, Japan 500
e-mail: tadaorii@aqua.ocn.ne.jp |
Joseph Muenzer, MD, Ph.D
Associate Professor of Pediatrics
Department of Pediatrics
Division of Genetics and Metabolism
University of North Carolina at Chapel Hill
642 Burnett-Womack, CB#7487
Chapel Hill, NC 27599-7487
Tel: 919-966-1447
Fax: 919-966-9042
E-mail: muenzer@med.unc.edu
Dr. Roberto Giugliani, MD, PhD
Professor of Medical Genetics, UFRGS, Brazil
Chief, Medical Genetics Service
Hospital de Clinicas de Porto Alegre
Rua Ramiro Barcelos, 2350
90035-003 - Porto Alegre - RS
Brazil
tel + 55 51 33168011
fax + 55 51 33168010
e-mail: rgiugliani@hcpa.ufrgs.br
Dr. Maurizio Scarpa
Department of Pediatrics
University of Padova
Via Giustiniani 3
I-35128 Padova Italy
e-mails: scarpa@child.pedi.unipd.it scarpa@pediatria.unipd.it
The International Morquio Organization will ask the Medical advisors the following major roles on behalf of Morquio families and societies:
1.Consultation with Morquio Families on any Morquio related issues: those discussions between families and doctors may be issued in the newsletter as a question and answer column.
2.Assessment to a new drug or treatment in addition to existing treatments such as surgical operations and oral medications and introduction of those therapies to the families.
3.Communication and support with the pharmaceutical companies and other third parties for the funding, publication, and agreement. |
